Laura King Edwards discusses her memoir Run to the Light
Mon 6/3, 7pm
Laura has it all: a great job, a loving family, a new husband, and a house in her hometown, where she can watch her sister, Taylor, grow up. But one month after her wedding, Laura and her family receive shocking news: Taylor has Batten disease. A rare, fatal disease that will cause Taylor to go blind, suffer seizures, and lose the ability to walk and talk. There is no cure. Laura thought she’d get to watch her baby sister grow up, but instead she’ll have to watch her die.
Unwilling to take no cure for an answer, Laura founds a charity with family and friends, Taylor’s Tale, to save children with the disease. Meanwhile, Taylor starts running, completing her first race blind. Inspired, Laura, a lifelong runner, begins running in half marathons to raise money and awareness. And also to run away from the pain.
Taylor’s Tale becomes a world leader in the fight against Batten disease, but not quickly enough to save Taylor. Stripped of her faith, Laura falls into a dark despair. But Taylor’s unwavering courage in the face of certain death gives Laura a renewed sense of purpose to turn her family’s tragedy into an opportunity–to ensure others won’t have to suffer as her sister has suffered.
Run to the Light is Laura’s inspiring account of how she found the courage to face indescribable loss, and of what it means to really believe.
Laura King Edwards is a writer, runner, and passionate rare disease advocate. She cofounded a nonprofit organization, Taylor’s Tale, which today is one of the world’s leading voices in the fight against rare disease. Edwards earned an English degree from the University of North Carolina at Chapel Hill and has spent her entire professional career in marketing. Oracle Fine Arts Review, Endurance Magazine, and many others have published her award-winning work. A prolific storyteller, she speaks frequently including TEDxCharlotte in 2017. She was recently named Charlotte's Woman of the Year. Today, Edwards lives with her husband and son in Fort Mill, South Carolina. Run to the Light is her first book.